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The Africa Centre for Disease Control (Africa CDC) is set to kick off action towards strengthening and harmonising the framework of policies, procedures, and practices that ensure healthcare data is managed, protected, and used responsibly throughout its lifecycle — health data governance — across the continent.
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Given the heterogeneity of NTDs, information pathways and data management practices supporting programmes to eradicate, eliminate and control these diseases have tended to be equally diverse. This situation has created an uneven, complex information pathway beset by duplication and dispersion of effort, inefficiencies and missed opportunities. The WHO-led development of the RHIS provides a unique opportunity to address several of these challenges and harness investments in systems by several...
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In an era of maximization of data collection, consumers are left to rely on walls of pop-ups and click-throughs as well as broad promises about companies “caring about privacy.” When you track your steps, google your symptoms, or check the price of a prescription, you shouldn’t have to worry about which companies can access and exploit this information in ways that may be completely unrelated to its original purpose.
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The European Parliament adopted on Wednesday (24 April) the European Health Data Space Regulation, a key step for Europe's digital healthcare that should facilitate access to cross-border medical data.
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EU institutions struck a deal on the European Health Data Space, having finally landed an agreement on the thorny issue of opt-out for secondary use of health data.
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While EU legislators debate between opt-in and opt-out options for the secondary use of health data under the European Health Data Space (EHDS) proposal, harmonising GDPR across the bloc could provide a solution.
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