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Patients have been left blindsided by Monash IVF's decision to temporarily halt treatments using donated eggs and sperm in New South Wales.
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A century after the Chinese Exclusion Act introduced its requirement for mass registration, the records created in this hostile context are being used to pursue collective healing, grounded in the personal, painful work of recovering ancestors who lived through the shame and regret of exclusion in silence.
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A Tasmanian coroner has released his findings from an investigation into 177 human specimens held in the collection of a university museum without the consent or knowledge of families. The investigation required complex manual searches and reconciliation of records with "very little additional resources" provided to the Coroners' Office to do the work.
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A University of Tasmania pathology museum retained and displayed body parts without consent from coronial autopsies. The specimens are from more than 100 people who died in Tasmania between 1953 and 1985. The Coroner's Office is investigating and has spent years reconciling their records with the museum's records.
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The Africa Centre for Disease Control (Africa CDC) is set to kick off action towards strengthening and harmonising the framework of policies, procedures, and practices that ensure healthcare data is managed, protected, and used responsibly throughout its lifecycle — health data governance — across the continent.
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UNRWA and Health Insight Asia have taken a key step in improving healthcare for millions of Palestine Refugees by taking the Agency’s use of electronic medical records to a new level.
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Given the heterogeneity of NTDs, information pathways and data management practices supporting programmes to eradicate, eliminate and control these diseases have tended to be equally diverse. This situation has created an uneven, complex information pathway beset by duplication and dispersion of effort, inefficiencies and missed opportunities. The WHO-led development of the RHIS provides a unique opportunity to address several of these challenges and harness investments in systems by several...
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The Human Rights Tribunal of Ontario has denied a former student union executive's request to limit public disclosure of her medical information in a discrimination case, ruling that privacy concerns do not outweigh the principle of open court proceedings.
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In an era of maximization of data collection, consumers are left to rely on walls of pop-ups and click-throughs as well as broad promises about companies “caring about privacy.” When you track your steps, google your symptoms, or check the price of a prescription, you shouldn’t have to worry about which companies can access and exploit this information in ways that may be completely unrelated to its original purpose.
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Medical records of hundreds of patients at a Sydney hospital's cancer genetics service have been reviewed following irregularities related to care by a single specialist.
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In South-Central Somalia, where conflict, displacement, and recurring natural disasters have for long deepened humanitarian needs, health systems have long struggled under the weight of outdated, paper-based processes. In a context where any delay results in loss of lives, the lack of reliable data and real-time visibility into health services and suboptimal supply chain performance has compromised operational efficiency, decision-making accuracy, and ultimately, the overall quality of healthcare.
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Medical information will be available from UK Biobank, despite western intelligence agencies’ security fears
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Medical information will be available from UK Biobank, despite western intelligence agencies’ security fears
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This week, it was reported that the United States National Park Service had begun scrubbing information from its exhibits about Harriet Tubman and the Underground Railroad; one of the most significant stories of resistance against chattel slavery in the United States.
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What seems at first like a logical move to modernize the government's archives may in fact be an ill-advised decision.
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Dans un monde où l’information est devenue à la fois omniprésente et suspecte, la destruction délibérée de bases de données scientifiques évoque de sombres souvenirs historiques. Elle représente une menace sérieuse pour l’avenir de la connaissance partagée, le progrès scientifique global et, plus fondamentalement, la richesse des nations.
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James Boasberg, the chief US district judge in Washington, ordered all messages in the group chat be preserved, adding that his decision was aimed at ensuring no messages were lost and not because he decided the Trump administration had done anything wrong. Boasberg is set to decide at a later stage whether the disappearing message function of the Signal chat violated federal records retention laws.
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The Trump administration’s efforts to strip diversity, equity and inclusion prompted the Defense Department to remove thousands of pages and images honoring the contributions of women and people of color. The Pentagon is restoring some of those web pages, saying the removal was a mistake.
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USAID's acting executive secretary told staff to use shredders and burn bags to dispose of files
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The acting executive secretary of the U.S. Agency for International Development Monday night ordered the destruction of classified records and personnel files, according to the March 10 email reported by The Guardian, The New York Times, and other outlets.
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